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Exploring the experiences of patients undergoing treatment and surviving with bone cancer


This cross-sectional qualitative study is an adjunct to stage 1 of another project (LTCM02.3) to develop a sarcoma-specific patient-reported outcome measure (S-PROM).
 This will be developed directly from patient-reported experiences to accurately reflect the issues that are important to them.  Sarcomas are a group of rare cancers of the bone and soft tissue.  In this project, approximately 20 patients with primary bone cancer (PBC) will be purposefully sampled and interviewed to understand their experience of living with this type of sarcoma.  Data will be analysed using thematic analysis.


A detailed understanding of patients’ experiences of PBC and outcomes most relevant and important to patients, which will confirm the relevance of the S-PROM and underpin a subsequent grant application to apply the strategy.

Principal Investigator: University College London Hospital

NMAHP Research Unit Collaborators: Professor Mary Wells

External Collaborators: Bennister L - Sarcoma UK, Storey L - Queens University Belfast, Fern L - National Cancer Research Institute, Gerrand C - Newcastle upon Tyne Hospitals NHS Foundation Trust,  Whelen J - University College London Hospital, Windsor R - University College London Hospital, Woodford J - Royal National Orthopaedic Hospital

Funder: Bone Cancer Research Trust

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